Tuesday, September 10, 2013

It's update time

Ok, on with the latest and greatest! Both  my sentinel nodes they sent for path came back cancer free, woo-hoo! My staging is finally completed as Clear Cell Sarcoma Stage 2A, which is non medical lingo meaning it's a shitty cancer (aggressive) but we caught it early and it's localized.

The biopsy that they sent to Texas for cytogenetics came back that it excretes one protein which means targeted therapy is available. We are still waiting on results from the other two but so far that is great. Now my medical oncologist has consulted with this Guru in NY at Mount Sinai who thinks we should hold off on the adjuvant therapy for now. His (and her) argument is that once it is completely surgically resected after radiation they don't know how long to give me the targeted therapy for or what to follow for results. Now if relapse does occur it almost always excretes the same proteins so we will just use it then. I guess I'm ok with that. I mean the prognosis isn't good for this cancer so part of me says do everything we can; however, another part of me says we can't treat what isn't there--this isn't magic. All in all, I'm happy with that.

Today I went to radiation for my simulation and am 4 tattoos fancier, lol. They put the tattoos so that the laser lines up in the same spot every time, they also make a cast of my ankle to insure that as well.

Other than that, my incision is healing. I am going to get into my boot tomorrow (first photography session since diagnosis). Then Thursday and Friday I am heading to the hospital for a chemo conference and then Sunday I am going to attempt a full 12 hour shift back on the floor!

On a side note, my sister decided to put together a fundraiser for research money (she's a little delusional, her goal is $20,000--I figure where there is a will, there's a way and that girl is a Vesey). Since this cancer is so rare there is very little research money directed towards this cancer, but everything we raise will go towards Clear Cell Sarcoma research. If you have a little extra to give, here is the link and if not please continue with your thoughts and prayers because they are working!

Here is the fundraiser link:
http://www.gofundme.com/ccsresearch

Here are some pictures from my healing!

Here is my incision from last night:

And if you look closely you can see the little tiny dot in the middle of the x's. 






1 comment:

Sarah @ More Sangria, please! said...

Meg! we haven't spoken in months and I randomly thought to see if you were still blogging, thank goodness you are.

I am so sorry about the effing cancer. You know I hate it. How are you doing? Please catch me up on what type it is and everything!

Keep strong and POSITIVE. xo