Thursday, September 5, 2013

The upward swing

Things are looking up (granted it was a bit hard to look much more down after Friday). I had a PET scan and a CT on Tuesday, thank goodness because they were negative. Yesterday I had my sentinel node biopsy in the OR and we are currently awaiting the results of that--hopefully we'll get a prelim results on Friday. I am bit tore up from the floor up but I'm hanging in there.

When the biopsied my ankle a week ago it wasn't healing because every time I put it in my walking boot it reopened the wound. I'm officially on crutches and am supposed to be non weight bearing on my ankle. I cannot start radiation until this wound heals so now we are looking at 10-14 days. Boo. 

I have another doctors appointment on Friday, it's with the radiation oncologist and we should do the mapping for the radiation treatment the following Monday. Other than that I've met with my medical oncologist, it's actually one that I work she was kind enough to take on a 27 year old patient considering she is a pediatric oncologist. My docs have also consulted this sarcoma specialist up in NY at Mount Sinai--this guy is a sarcoma God, he has been researching sarcomas since I was born. If we need to go up there after my resection then that is what we will do.

The last piece of good news is that there are three proteins that 70% of clear cell sarcomas excrete (70% of them excrete at least one of the three) and if mine does there is a adjuvant therapy I can go on after my resection. They sent my biopsy out to Texas to find out if mine does…fingers crossed.

I'm feeling a bit better, I trust in my surgeon, I trust in my docs--I really think I can beat this.

Here are a couple of pictures of my battle wounds:

1 comment:

sprinkles said...

Ouch, that looks painful!

I'm so sorry you're having to go through all of this. I've been keeping you in my prayers and will continue to do so.